What’s the study about?
The overall goal of this study is to learn about the impact of
breast-conserving surgery/lumpectomy, mastectomy, and mastectomy with
breast reconstruction on a woman’s quality of life, general health care
experience, and satisfaction with care and outcomes.
What’s involved?
If you’re interested in this study, you will be asked 5 questions to
see if you meet the criteria to sign up for the study. If you are
eligible to participate, you will receive a link to the study. If you
sign up for the Evaluating Patient Reported Outcomes in Breast Cancer
study, you will be contacted via email by the research team with
instructions on completing the on-line screening form and surveys.
You will be asked to provide basic demographic information (such as
age and ethnicity) and answer questions about your breast cancer
diagnosis and treatment, overall health, problems or complaints related
to breast cancer and its treatment, and the impact of cancer on your
life. The full survey will take approximately 30-45 minutes to complete.
You can complete the survey in more than one sitting; you can take
breaks as needed.
Who is conducting the study?
Dunya Atisha, MD, and Amy Abernethy, MD, at Duke University Medical Center, Durham, NC
Where?
Anywhere in the United States – this is an on-line study which you
will be able to complete either on a desktop, laptop, or iPad-like
technology.
Who can participate?
You can sign up for the Evaluating Patient Reported Outcomes in Breast Cancer study if you meet ALL of these MAIN criteria:
• You are a woman over the age of 18
• You have had a previous diagnosis OR a current diagnosis of breast
cancer of any stage. This includes those who have had a previous OR
current diagnosis of LCIS, DCIS, or Stage IV metastatic breast cancer.
• You had surgery to treat your breast cancer
• You have access to the Internet and are willing to complete an on-line survey
• You live in the United States
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